Just when we thought we were settled, we had our lovely little family together and our biggest challenges were night feeds and nap times, poor Max is now back in hospital.
It began last Tuesday when he had his check up, where the doctor said although he was putting on weight it wasn’t enough and recommended us mixing 70ml of my milk with 30ml of formula at every feed. We did so and almost within a day began to feel he was much more unsettled. Then his nappy products didn’t look quite right. And then by Friday his feeding was all over the place, he was quite lethargic and by the evening he had gone really pale.
I’d sought advice from the health visitor who said it could just be the switch to formula but when Dylan came home he said there was a massive difference in Max’s appearance from that morning so we called out of hours and went for an appointment there, which eventually turned into an admission to the children’s ward at our local hospital (ten minutes away from our house compared to an hour for the women’s/children’s hospitals he was in previously).
That night was terrible. He’d lost 11 ounces in three days and at one point became unresponsive when they were trying to do a lumbar puncture on him. They pumped loads of fluids into him, some medication as he was severely acidic and did about a million tests.
Then they called the intensive care team to come and see him for an assessment, with it being touch and go whether he would be moved to another hospital with an intensive care ward. Luckily he’d responded to the fluids and meds so they said he could stay at our local hospital with the specialist teams from the hospital where he had his hernia surgery advising the doctors here.
He restarted feeding, small amounts at first which he wasn’t happy about, and has been gradually gaining weight each day. Currently (Tuesday) he’s still having lots of tests to determine if there is an underlying condition relating to his kidneys, liver or metabolism but he’s just come off his antibiotics because there’s no clinical evidence of infection.
One of the theories they’re working on is that Max has had a severe reaction to cow’s milk protein (there is a much higher amount in formula than cow’s milk which would explain why he became so poorly after starting the formula), so they’ve asked me to stop having dairy and they’re also doing some tests relating to that.
If he does have that then, rather than growing out of it like some children do, because he became so unwell at such a young age it’s possible it may be a life-long allergy.
He is doing well and is very alert and wanting to feed a lot which are all good signs. Compared to the pale little lifeless boy we had on Friday, he’s once again proved how strong he is and bounced back. We’re just hoping for an answer soon so we can take him home again as another round of this is not what any of us wanted!
Harriet, Alexandra and Max x